Purpose and Focus
To produce effective medications and treatment strategies, as well as identify previously unknown patterns in disease or disorder development, one needs a patient registry. The National Institutes of Health (2020) play a vital role in this process. Providing vital information about patients that suffer from a particular disease or disorder, the National Institutes of Health (2020) offer first-hand information that can become research material to improve the current system of managing the disease. The registries chosen for this particular overview are the Cancer Genetics Network (n.d.) and the Cerebral Palsy Research Network (n.d.). The specified registries supply vital data to scientists and academics, contributing to the analysis of cancer and cerebral palsy causes and development. Specifically, the Cancer Genetics Network gives insight into gene mutations determining cancer development and strives to create opportunities to reduce the threat of the disease. The Cerebral Palsy Research Network, in turn, uses patient data to improve the current treatment strategies and the quality of life in people with cerebral palsy.
Usefulness
Both registries will help to advance public health and improve citizens’ well-being significantly. For instance, the Cancer Genetics Network (n.d.) has massive potential from the research perspective. Namely, the registry will supply the information needed to embrace the opportunities at reducing the threat of cancer at the genetic level by analyzing gene mutations. The Cerebral Palsy Research Network (n.d.) also offers valuable information that will help to better accommodate the needs of patients with cerebral palsy. Furthermore, the Cerebral Palsy Research Network gives opportunities for research by studying the similarities and differences in patients’ muscle transformation, as well as the effects of specific therapies on patients’ health. Due to the focus on interdisciplinary collaboration, both networks are bound to supply a huge range of useful data for addressing current health issues.
References
Cancer Genetics Network. (n.d.). About the CGN. Web.
Cerebral Palsy Research Network. (n.d.). Vision. Web.
National Institutes of Health. (2020). NIH clinical research trials and you – List of registries. Web.