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Newborn Adrenoleukodystrophy Screening

Practicum and Policy Background

Florida Nurses Association arranged a meeting for nursing Practitioner Students and the senators. The conference held at the Florida Capitol, Tallahassee. The plan of the conference was to talk about new health policy of Newborn Adrenoleukodystrophy Screening that was yet to be ascended into law. The students were to listen to the legislature’s opinion on the matter and request his support for the bill to succeed the legislative process (Bavon, 2013, pp. 29-44).

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Every student was given the opportunity to choose one of the elected leaders to discuss the Newborn Adrenoleukodystrophy Screening bill. Being one of the students, I chose Rene Garcia, who is the senator of my district, locality 38. I chose him, since he introduced the bill to the Senate. I was capable of meeting him in person and listening to one of his speeches. After introducing the Newborn Adrenoleukodystrophy test statement, Rene Garcia became an eminent figure for my plan, and I had enough confidence in getting substantial explanations from him rather than anyone else. My obligation as a volunteer scholar was to meet the senator and retrieve details on the Newborn Adrenoleukodystrophy Screening bill that was in the legislative process. I had to understand how it would affect all stakeholders in the health sector and population in common (Bavon, 2013, pp. 29-44).

According to Rene, other officials responsible for addressing the issue had other problems to present for discussion regarding the health of children. Nevertheless, the problem affects the lives of numerous children and, therefore, must be considered fast and thoroughly. The government has the mandate to protect and ensure that all newborn babies get proper medical examination at delivery or at any point in their development. Still, because of the numerous costs, which the treatment of the problem ensues, middle-income citizens cannot afford to take their newborn babies for Newborn Adrenoleukodystrophy test. The infant Adrenoleukodystrophy test bill will help prevent the disease through proper screening as by the provision of the ruling (Kephers, 2001, pp. 16-34). Rene Garcia was interested in the bill because the disease affected a large population of the newborn children and there were no enough facilities to help in identification of the disease. Some policies that met the same criteria for screening the newborn babies were already in the laws of the land. Frees leukemia screening to every child at birth was necessary according to the laws (Kephers, 2001, pp. 16-34).

The number of children, who are affected by Adrenoleukodystrophy, is increasing to a frightening rank. The elevated numeral has prepared the administrators to find a way of compelling the government to come in and help in controlling the situation. The residents have the authority to onward their emerging complains to the government through their voted chiefs. Non-governmental associations in the area of health are fighting to improve the health status of all citizens from infants to grown-ups. The groups put a lot of pressure on the government to perform in the field of health (Kephers, 2001, pp. 16-34).

The Newborn Adrenoleukodystrophy is a problem that cuts across with its effects on the ethical, social, economic, cultural and health. Proper screening for Newborn Adrenoleukodystrophy as by the plan will advance ethics in the society and social status. The government will finance the screening and so, it would be healthy to the culture and economy of the citizens. The bill can save our young generation and generations to come from the lethal disease Adreno-leuko-dystrophy (Kephers, 2001, pp. 16-34).

An extra investigation should be done to spot the causative factors of Adrenoleukodystrophy and effective vaccine to prevent the prevalence of the disease in newborn babies. Specifically, the bill proposed by Senator Rene Garcia for Newborn Adrenoleukodystrophy Screening is facing many oppositions and barriers. To be more specific, the ministry of health is opposing the bill with claims that there are no enough funds to implement the bill in case it passes into law. The annual budget did not allocate funds for emerging issues and it is hard to prepare a supplementary budget to cater for the same bill. The human right organization is also opposing the screening with claims that the screening would endanger the lives of newborn babies because the screening machines use strong radiations that are unsafe (Mason, 2012).

The policy in question will affect people on not only the legislative level, but also on the social one, therefore, altering their perception of the subject matter and allowing for better treatment of the children with the syndrome in question. Previously little attention was paid to the idea of detecting the issue at the earliest stages of its development and, therefore, the opportunity of treating the disorder at its earliest stages was dismissed immediately. With the adoption of the regulation mentioned above, the opportunity for identifying the ALD will also allow for defining whether the family members or the siblings have been affected. As a result, the problem will be eliminated faster. In addition, spreading the awareness will help people treat the ALD patients with the respect that they need.

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For the bill to come into force, it has to go through a series of legislative procedures. The Infant Adrenoleukodystrophy test is a general bill that has a large impact on a state. The bill is at present in the last phase in the Senate and after it passes the council, it lingers for a presidential sign to turn into a law.

The goals and objectives of the elected officials in this proposal are to pass the bill and make screening available to all denizens of the population, thus, preventing the process of disease development. The law will relieve the citizens from financial pressure to provide medical care to their newborn babies in case of Adrenoleukodystrophy infection (Oloo, 2013, pp. 19-24).

Legislative Initiative Plan

The Newborn Adrenoleukodystrophy Screening proposal requires a number of strategies to move forward to pass the legislative process. Rene Garcia who proposed the bill has the duties to convince his fellow senators in the Senate to support the bill. In order for the bill to bypass the council, the greater parts of the members have to support the bill. The regulation is fifty bonus one of the affiliates. Another tactic is the human right groups. The groups mount the weight on the government to pass the proposed bill for proper medical services to the civilians (Oloo, 2013, pp. 19-24).

Newborn Adrenoleukodystrophy Screening and legislative sitting (CS/SB 632: Newborn Adrenoleukodystrophy Screening, 2015)

Date Body Action
February 3, 2015 Senate The bill is filed
February 6, 2015 Senate The bill is referred to Health Policy; Banking and Insurance; Appropriations -SJ 75
March 3, 2015 Senate The bill is introduced (SJ 75)
March 18, 2015 Senate The bill is put on the Committee agenda
March 23, 2015 Senate Votes are calculated;; YEAS 7 NAYS 0 (SJ 259)
March 25, 2015 Senate The reference review is pending under Rule 4.7(2) – (Committee Substitute)
March 31, 2015 Senate • Health Policy reads the CS for the first time (SJ 269 )
April 2, 2015 Senate The bill is put on the Committee agenda– Banking and Insurance, 04/07/15, 1:30 pm, 110 Senate Office Building

Nursing Roles

The proposed Newborn Adrenoleukodystrophy Screening bill will affect nurses as well as patients. In case the bill passes into law, the implementation of the Newborn Adrenoleukodystrophy Screening will need the introduction of new medical equipment. The equipment acquisition and use will be a challenge for the nurses because training sessions must be carried out for the nurses to acquire relevant skills. It is, therefore, essential that the government has the mandate to train the nurses and doctors how to operate the new screening machines (Mason, 2012).

The modern medical policies compel all stakeholders in the medical field to abide by new technologies that arise in their field and use them appropriately. The field of medication is one of the most researched fields to help the swelling challenges that emerge daily. New diseases are reported daily so that innovative methods should be created to cope with them (Mason, 2012).

The bill will affect the citizens positively, because, when the bill passes into law, awareness concerning the nature, symptoms and treatment of the Newborn Adrenoleukodystrophy will be revealed and made public. Moreover, newborns will get medication for Adrenoleukodystrophy through screening and treatment, and the citizens will be able to enjoy the screening services for free. The bill will make the government finance the Newborn Adrenoleukodystrophy Screening in hospitals, which will increase the income of sanatoriums. The specified source of income is especially important, as the cases of civilians failing to pay their arrears after medication in hospitals are high. The hospitals are prone to losses in cases when many citizens fail to give their arrears. Purchase of therapeutic amenities is extremely expensive making the hospital bills higher than the capacity of many citizens (Mason, 2012).

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When the proposed bill becomes a law, it will be necessary to increase the amount of workforce in hospitals and consequently create employment opportunities for the unemployed citizens. As unemployment is a major problem in the globe at present, the above-mentioned change can be viewed as rather positive. To help the citizens, the government should support and welcome any proposed bill that may lead to the creation of jobs, which the proposed bill for Newborn Adrenoleukodystrophy Screening will contribute to creating in the health sector (Gordon, 2011, pp. 93-104).

The Nursing Practitioners Association and all stakeholders in the field of health support the proposed bill by Rene Garcia. The purpose of every entity in the therapeutic field is to offer quality services to the natives. Consequently, when a statement that would facilitate medical practitioners offer their services better is proposed, they all support the bill to their maximum ability (Mason, 2012).

With the help of this bill, nurses will be able to offer medication services for people with ordinary and simple disorders. In the event of difficult instances, they will ask the physician to counsel them on the technique onward. This signifies nearly all of the work is on the nurses in sanatoriums (Nelson, 2011, pp. 54-74).

Based on the discussion with Senator Rene Garcia, I recommend additional nurses in hospitals for quality and timely medical services. The hospital managers should also consider increasing nurses’ salaries in order to motivate them for better performance.

Based on the alterations, which it will bring into the realm of nursing, the proposed bill of Newborn Adrenoleukodystrophy Screening can be deemed as a positive one; therefore, I support Senator Rene Garcia so that he could help children and enhance the well-being of our generation, as well as the generations to come.

References

Bavon, H. (2013). Medical governance. Nursing (pp. 29-44). New Yok: Johns Hopkins University Press.

CS/SB 632: Newborn Adrenoleukodystrophy Screening. (2015). The Florida Senate. Web.

Gordon, B. (2011). Natural compounds. An approach to biomolecules and synthetic chemistry (pp. 93-104). America: Oxford University Press.

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Kephers, W. (2001). Industrial policies. An approach to medical rules (pp. 16-34). America: Oxford University Press.

Mason, D.J., Leavitt, J. K, & Chaeffer, M.W. (2012) Policy and politics in nursing and health care, (6th ed.). New Yok, NY: Johns Hopkins University Press

Nelson, B. (2011). National laws. Nursing principles (pp. 54-74). America: Oxford University Press.

Oloo, M. (2013). Modern health. Nursing policies (pp. 19-24). New Yok: Johns Hopkins University Press.

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